EFFECTIVE PATIENT ADVOCACY – CALL TO ACTION
Impact Sessions and Workshops
In association with
JUNE 5 -9, 2023
World Stem Cell Summit
Wake Forest Biotech Place Conference Center
Winston-Salem, North Carolina
Patient Advocacy Impact Sessions & Workshops – June 5th through 9th
MONDAY JUNE 5, 2023
- 01:30:00 PM – 02:20:00 PM – Heroic Tales of the Human Spirit – Overcoming Pain and Suffering; Lisa McClellan, founder of Ring of Brotherhood Foundation and Christy Martin, World Boxing Council – Biotech Place, Atrium
- 02:30:00 PM – 03:20:00 PM – Taylor’s Tale: Run to the Light; Sharon & Laura King – Biotech Place, Atrium
TUESDAY JUNE 6, 2023
- 08:45:00 AM – 09:00:00 AM – Opening Remarks, Bernard Siegel, Host – Classroom
- 09:00:00 AM – 09:45:00 AM – Patient Advocacy: In Sight of a Cure for Type 1 Diabetes; Tom Karlya/DRIF & Giacomo Lanzoni, PhD – Classroom
- 09:45:00 AM – 10:15:00 AM – Patient Advocacy: Future Health: Perspectives on Health Equity, Distributive Justice and Advocacy; Desiree Cox, MD, PhD – Classroom
- 02:15:00 PM – 02:45:00 PM – Robots, Technology and the Future of Caregiving; Eve Herold, HSAC – Classroom
- 02:45:00 PM – 03:15:00 PM – Update on the Alliance for Longevity Initiatives; Dylan Livingston – Classroom
- 03:15:00 PM – 03:45:00 PM – Patient Advocacy: Panel on the Importance of Patient Advocacy; Moderator: Melissa King MBA – Classroom
- 03:45:00 PM – 04:15:00 PM – Patient Advocacy: On Hope and Hoping – How Patient Access to Information Can Both Inspire and Drive
Us; Doug Oliver MSW – Classroom
WEDNESDAY JUNE 7, 2023
- 09:45:00 AM – 10:15:00 AM – Umbilical Cord Blood Use in Children with Cerebral Palsy, Jessica M. Sun, MD – Classroom
- 10:15:00 AM – 10:45:00 AM – Huntington’s Disease: A Patient Ambassador’s Journey; Frances Saldaña – Classroom
- 11:00:00 AM – 11:15:00 AM – The Emily Whitehead Story: The Power of Narrative in Patient Advocacy; George Eastwood, Emily Whitehead
Foundation – Classroom - 11:15:00 AM – 11:45:00 AM – Patient Advocacy: True Trials; Keith March, MD, George Eastwood – Classroom
- 01:00:00 PM – 01:15:00 PM – Patient Advocacy: Sickle Cell Advocacy & Update; Adrienne Shapiro – Classroom
- 01:15:00 PM – 01:30:00 PM – Patient Advocacy: Cystic Fibrosis: How Far We’ve Come, Siri Vaeth – Classroom
- 02:45:00 PM – 03:15:00 PM – Patient Advocacy: Getting Into the News; Stephanie Dainow, Lifespan.io – Classroom
- 03:15:00 PM – 03:45:00 PM – Understanding Capitol Hill: Advocates and Lobbyists; Janet Marchibroda – Classroom
- 03:45:00 PM – 04:15:00 PM – Patient Advocacy: Video: Building Coalitions as a Positive Change Agent; William Remak, HSAC – Classroom
- 05:00:00 PM – 06:30:00 PM – Plenary: BBQ Event in Bailey Park
FRIDAY JUNE 9, 2023
- 9:00:00 AM – 10:00:00 AM – The History of Patient Advocacy: From Stem Cells to the Future – Classroom
- 10:00:00 AM – 10:30:00 AM – Is there a common neural network signature to cognitive disorders that is druggable?: Evan Snyder, MD, PhD, FAAP – Biotech Place, Atrium
- 10:30:00 AM – 11:45:00 AM – Town Hall of Attendees & Stakeholders, WSCS – Biotech Place, Atrium
Effective Patient Advocacy – Meet The Speakers
Bernard Siegel, JD
Executive Director, Regenerative Medicine Foundation
Dr. Desirée Cox, MD, PhD
Director of Health Equity and Distributive Justice Initiatives at Healthspan Action Coalition
Stephanie Dainow
Executive Director at Lifespan.io (Lifespan Extension Advocacy Foundation)
Eve Herold
Director of Policy Research and Education at Healthspan Action Coalition
Alan Jakimo, JD
Senior Public Policy Research Fellow Regenerative Medicine Foundation
Tom Karlya
Senior Vice President Diabetes Research Institute Foundation
Giacomo Lanzoni, PhD
Assistant Professor Diabetes Research Institute, Department of Biochemistry and Molecular Biology
University of Miami
Melissa King
Chief Operating Officer and Founding Board Member of Healthspan Action Coalition
Sharon King
Patient Advocate and State-appointed Member of the North Carolina Advisory Council on Rare Diseases
Dylan Livingston
Founder and President of the Alliance for Longevity Initiatives (A4LI)
Jeanne Loring, PhD
Advisor to Aspen Neuroscience, Professor Emeritus Scripps Research
Janet Marchibroda
President, Alliance for Cell Therapy Now
Christy Martin
Former Female Boxer elected to the International Boxing Hall of Fame
Lisa McClellan
Senior Partner Ring Of Brotherhood, LLC
Doug Oliver, MSW
Patient Advocate and founder of Regenerative Outcomes Foundation
Jenifer Raub
Patient Advocate for Parkinson’s disease; President, Summit for Stem Cell Foundation, Inc.
William (Bill) Remak
Senior Advisor, Coordinator at Global Immunization Action Network Team (GIANT)
Frances Saldana
President Emeritus and Co-founder, UCI HD-CARE
Evan Y. Snyder, MD, PhD., FAAP
Professor and Program Director, Stem Cells and Regeneration Program
Sanford Burnham Prebys Medical Discovery Institute
Siri Vaeth, MSW
Executive Director of the Cystic Fibrosis Research Institute (CFRI)
2023 COMBINED SUMMIT SESSIONS
2023 Public Day at Biotech Place Innovation Quarter Winston-Salem
2023 WFIRM/RMF Regenerative Medicine Essentials Course
Symposium Intersection of RegMed & Healthspan
Effective Patient Advocacy - Action Sessions &Workshops
Regenerative Medicine & The Commercial Space Economy
