2015 Stem Cell Action Awards (Sponsored by Americans For Cures)
Five distinguished honorees were selected for the 2015 Stem Cell Action Awards. For 11 years, the Genetics Policy Institute (GPI) has honored the stem cell and regenerative medicine community’s top innovators, leaders, and champions. The honorees were recognized at a gala dinner on Thursday, December 10 during the 11th annual World Stem Cell Summit at the Hyatt Regency Atlanta in Atlanta, Georgia.
Last year’s Stem Cell Action Award Honorees include a courageous scientist, dedicated science publisher, a bioengineering leader and impactful patient advocacy organizations and inspiring advocates. The honorees are trailblazers in their respective fields.
Contact Alan Fernandez, Genetics Policy Institute (650)847-1640 and/or firstname.lastname@example.org to learn more about special recognition and sponsorship opportunities.
MEET THE 2015 STEM CELL ACTION AWARD HONOREES
Leadership Award: Robert M. Nerem, PhD – Bob has a long and distinguished career in engineering for medicine. A giant in the field of cellular and tissue engineering, Bob began at Georgia Tech in 1987 as a Professor and Parker H. Petit Distinguished Chair for Engineering in Medicine. He is the founder of the Georgia Tech/Emory Center for the Engineering of Living Tissues which has evolved into the Center for Regenerative Engineering and Medicine (REM), a joint collaboration between Emory University, Georgia Tech and The University of Georgia, with a mission to fundamentally transform the treatment of human diseases and injuries through the development and translation of new technologies that enhance the body’s ability to heal itself. The integration of engineering technologies, biological discoveries, and clinical expertise and infrastructure will establish Georgia as a national leader in regenerative clinical therapies.
Education Award: Ann Murphy, PhD – Ann co-founded AlphaMed Press in 1983 and launched STEM CELLS, the first journal devoted entirely to the subject. With offices in Durham, NC, San Francisco, CA, and Belfast, NI, Ann publishes and is the managing editor of two other international peer-reviewed journals with globally recognized editorial boards dedicated to advancing research and education in their focused disciplines: The Oncologist and STEM CELLS Translational Medicine (the official journal partner of the Regenerative Medicine Foundation). In 2000, Ann co-founded the Society for Translational Oncology to fill the gap between discovery of new cancer treatments and their global translation into oncology practice. The Oncologist is its official journal.
Advocacy Award: Tory Williams & the Alabama Institute of Medicine – Born and raised in the small town of Millry, Alabama, Tory Williams is a proud mother or 4. She co-founded with Roman Reed the nonprofit Alabama Institute of Medicine (AIM). She played a leadership role in the passage of the TJ Atchison Spinal Cord Injury Act, also known as “TJ’s Law” which provided over $800,000 in funding for spinal cord injury in Alabama. Even while battling polycystic kidney disease (PKD), Tory found time and strength to author a compelling book, Inevitable Collision- The Inspiring Story That Brought Stem Cell Research to Conservative America.
Advocacy Award: Jeanne Loring, PhD – Jeanne is Professor and founding Director of the Center for Regenerative Medicine at The Scripps Research Institute. She is a bold and outspoken advocate, educator and gifted scientist. Her research team studies genomics and epigenomics of hESCs and iPSCs. As part of the “Frozen Zoo” project her lab generated the first reprogrammed cells from endangered species. Her translational projects include stem cell applications for Parkinson’s disease, multiple sclerosis, autism, Alzheimer disease, and addiction. Under her guidance, her lab is creating collections of cell lines for disease modeling and ethnicity-associated drug toxicity studies. Jeanne is also involved in the societal issues associated with stem cell research, including the ethics of stem cell generation and clinical use, the legal implications of stem cell patents, and educating the public about the dangers of unregulated stem cell treatments. She has served on the ethics boards of Merck KGaA and the Bill and Melinda Gates Foundation and is a long-standing member of the GPI Science Advisory Board.
Inspiration Award: CURE CP – Cerebral palsy (CP) is a broad term used to describe a group of chronic “palsies” — disorders that impair control of movement due to damage to the developing brain. CP is one of the most common causes of chronic childhood disability, affecting 1 in 323 children (second only to autism). Cure CP, a nonprofit organization, undertakes and supports initiatives at leading, American research institutions developing therapeutic methodologies for the treatment of CP. Through passionate, grassroots advocacy and fundraising, Cure CP undertakes and supports forward-thinking research, including current, ongoing clinical trials at Duke University School of Medicine and UTHealth. Founded by two Atlanta-based families with children affected by CP, Cure CP and its dedicated volunteers seek a better life and future for children and adults with cerebral palsy.
PAST STEM CELL ACTION AWARD HONOREES
Leadership Award: Henry Cisneros – Henry Cisneros’ recent accomplishments in the development of the San Antonio biosciences community are the latest chapter in an extraordinary life in politics, service, business and advocacy. In 1981, he was elected mayor of San Antonio, becoming the first Hispanic-American mayor of a major U.S. city. In 1992, President Clinton appointed Mr. Cisneros Secretary of the U.S. Department of Housing and Urban Development. In the following years, Mr. Cisneros was president and chief operating officer of Univision Communications, served as president of the National League of Cities and as deputy chair of the Federal Reserve Bank of Dallas. He is the author and editor of several books. He is currently a member of the advisory boards of the Bill and Melinda Gates Foundation and the Broad Foundation and an officer of Habitat for Humanity International. Today he is Chairman of the CityView companies, working with urban homebuilders to create homes priced within the range of average families. In his work as Chairman of BioMed SA, an organization working to accelerate San Antonio’s health care and biosciences sector, Mr. Cisneros is a champion of research and innovation.
Hero Award: William R. Brinkley – Dr. William R. Brinkley is an internationally acclaimed cell biologist who has made significant contributions to the field. He is dean emeritus of the Graduate School of Biomedical Sciences and distinguished service professor in the department of molecular and cellular biology at Baylor College of Medicine. This year, he was honored with a E.B. Wilson Medal, the highest scientific honor of the American Society for Cell Biology. He is a member of the Institute of Medicine, a former president of the American Society for Cell Biology, the International Federation for Cell biology and the Federation of American Societies for Experimental Biology, and the recipient of many awards. A well-known scientist statesman, he has testified before the U.S. Congress and the Texas Legislature in favor of funding for science as well as in defense of scientific freedom and integrity.
International Leadership: Japanese Society for Regenerative Medicine (JSRM) – Japanese Society for Regenerative Medicine has made incredible strides in developing regenerative technology to advance medical research and contribute to human health. JSRM gathers knowledge from different fields to encourage cutting-edge, creative approaches and groundbreaking research. In 2012, JSRM’s director, Professor Shinya Yamanaka, was awarded the Nobel Prize in Physiology or Medicine. JSRM is campaigning for the relaxation of Japanese government regulations concerning studies, clinical trials, and clinical applications related to regenerative medicine. As a result, new laws, including the Act for the Promotion of Regenerative Medicine, Revised Japanese Pharmaceutical Law, and Act to Ensure Safety in Regenerative Medicine were approved in 2013. The first clinical trial using iPS cells on human cells is scheduled to start this autumn in Japan. JSRM is part of the reason that Japan is at the forefront of stem cell science.
Education Award: Texans for Stem Cell Research – The volunteer-led Texans for Stem Cell Research (TSCR) is creating a stronger environment for new research and hope by educating the people of Texas and their policymakers on the promise of stem cell research and therapies so those suffering from chronic diseases or terminal illnesses will enjoy healthier lives. TSCR is an energetic fundraiser of FDA approved clinical trials, raising tens of thousands of dollars and bringing positive attention to stem cell research. They host public events and research symposiums uniting Texas’s world-class scientists and clinical researchers across institutions.
Advocacy Award: Mostyn Foundation – For more than 50 years as an independent grantmaker, Mostyn Foundation has invested in causes with a deep-seated commitment to improving the human condition. Mostyn Foundation is a long-standing partner with Genetics Policy Institute in the advancement of the pro-cures movement.
Inspiration Award: Huntington’s Disease (HD) Advocacy Community – For the first time, GPI is awarding a Stem Cell Action Award to a grassroots network of groups and individuals. Huntington’s disease is a genetic neurodegenerative and fatal brain disease. The HD Community includes some of the most tireless, passionate and effective advocates for stem cell research and regenerative medicine. Each child born to a parent with HD has a 50/50 chance of inheriting the same fate, so the HD community has watched this disease devastate generation after generation of their families. Today, advocates are fighting for their children and grandchildren, pushing for regenerative medicine trials in order to bring about treatments, therapies and a cure in the future. A national grassroots network of organizations including Help 4 HD International, the Joseph P. Roberson Foundation and HD CARE is building momentum and support for new, promising research.
Leadership Award: Denny Sanford
Denny Sanford has focused his philanthropic endeavors on health care and medical research. His total giving now totals more than $850 million. In 1986, Mr. Sanford purchased United National Corporation in Sioux Falls, South Dakota (now First Premier Bank) and expanded it, along with a new credit card company, Premier Bankcard. Today, he supports research programs across the U.S. including Sanford Children’s Hospital in Sioux Falls; T. Denny Sanford Mayo Clinic Pediatric Center in Rochester, MN; and the T. Denny Sanford Pediatric Center at Florida Hospital for Children. He also donated funds to the University of South Dakota Sanford School of Medicine. In California, he supports Sanford-Burnham Medical Research Institute, the Sanford Consortium for Regenerative Medicine, the Salk Institute and the Children’s Hospital of Los Angeles.
Leadership Award: Malin Burnham
A dedicated philanthropist, Malin Burnham has chaired major non-profits, co-founded organizations and serves as Board Member of Sanford-Burnham Medical Research Institute, and Chair of the Sanford Consortium for Regenerative Medicine, among many other appointments. Chairman of John Burnham & Company Insurance and Burnham Real Estate since 1949, Mr. Burnham is a native San Diegan who graduated from Stanford University in 1949 with a B.S. in Industrial Engineering. Burnham Real Estate was acquired by Cushman & Wakefield in 2008. He has been active as a board member of several major corporations and 16 firms. Mr. Burnham also served as Trustee of Stanford University for 10 years.
National Advocacy Award: Dr. Paul Knoepfler
Dr. Paul Knoepfler is an Associate Professor in Cell Biology and Human Anatomy at the UC Davis School of Medicine. He leads the Cancer Stem Cell Initiative at the UC Davis Comprehensive Cancer Center, and is a member of the UC Davis Institute for Regenerative Cures. Dr. Knoepfler is also an Associate Investigator of the Institute for Pediatric Regenerative Medicine at Shriners Hospital of Northern California. As a cancer survivor, he advocates for cancer patients and those interested in stem cell treatments. His stem cell blog, ipscell.com, is a public education and patient advocacy tool read by a diverse cross-section of the stem cell community. His outreach efforts include offering a stem cell whitepaper in 28 languages. His book, Stem Cells: An Insider’s Guide will be published this year. Dr. Knoepfler received a B.A. in English Literature from Reed College and his Ph.D. from UCSD School of Medicine in Molecular Pathology.
Education Award: Mary Ann Liebert
Mary Ann Liebert is the president and CEO of Mary Ann Liebert, Inc., a media empire known for establishing authoritative peer-reviewed journals in promising areas of science and biomedical research. Its biotechnology trade magazine, Genetic Engineering & Biotechnology News (GEN), debuted in 1980, was the first in its field, and is today the industry’s most widely read publication worldwide. Stem Cells and Development is an authoritative peer-reviewed journal dedicated to developments in the biology, characteristics, and therapeutic utility of stem cells. Many journals she publishes intersect the field of regenerative medicine, contributing to the scholarship and advancing stem cell science. Ms. Liebert is also the founder and executive vice president of the Rosalind Franklin Society, which recognizes and advances important contributions made by women in the life sciences.
Inspiration Award: Roman Reed
Roman Reed has been the inspirational guiding force for raising over $100 Million dollars for stem cell and neurological research. President of the Roman Reed Foundation, Roman was paralyzed playing college football in 1994. He has been fighting to advance awareness and research ever since. Mr. Reed, along with his father, Don Reed, created the Roman Reed Spinal Cord Injury Research Act, which established California state funding for research for a spinal cord injury paralysis cure. “Roman’s Law” funded early human embryonic stem cell (hESC) clinical trials and raised $14 million in its first 10 years, creating several scientific breakthroughs. California’s “Roman’s Law” was so successful, it has now become a model for other states. Mr. Reed was instrumental in creating and passing the TJ Atchison Spinal Cord Injury Research Act in Alabama, which generates funding for research at the University of Alabama at Birmingham. Mr. Reed is involved with many public/private partnerships, including the Roman Reed Core Laboratory at UC Reeve-Irvine Research Center and The Stanford Partnership for Spinal Cord Injury and Repair. Mr. Reed has a BA in American Studies with an emphasis on Politics and Leadership from the University of California, Berkeley.
2012 STEM CELL ACTION AWARD HONOREES
Leadership Award: Susan Solomon
Susan Solomon is the co-founder and CEO of The New York Stem Cell Foundation (NYSCF), which was established in 2005 to accelerate cures through stem cell research. Under her leadership, NYSCF is supporting over 100 leading researchers at top laboratories around the world including NYSCF’s own laboratories. She has raised approximately $100 million in the quest for cures and enabled important global research initiatives.
Media Integrity Award: “60 Minutes”
CBS News’ “60 Minutes” has provided an invaluable contribution to public awareness exposing risks and rip-offs foisted upon vulnerable patients and their families. The two-part “21st Century Snake Oil” investigation of offshore clinics making outrageous claims and luring desperate patients to undertake dubious, possibly dangerous, unproven “treatments,” has educated the public and launched investigations by both the FDA and FBI.
National Advocacy Award: Alliance for Regenerative Medicine
With more than 120 members, the Alliance for Regenerative Medicine (ARM) is a Washington, DC-based multi-stakeholder advocacy organization that develops and advocates for legislative, regulatory and reimbursement initiatives necessary to facilitate research and commercialization of regenerative medicine products.
Public Outreach & Education Award: Nebraska Coalition for Lifesaving Cures
The grassroots Nebraska Coalition for Lifesaving Cures (NCLC) includes business, education, community leaders and citizens who support stem cell research in Nebraska. The NCLC is recognized as one of the best-organized and effective grassroots advocacy groups in the United States.
Inspiration Award: Sabrina Cohen
Sabrina Cohen leads the Sabrina Cohen Foundation (SCF), a nonprofit organization dedicated to building a global network of top scientists and clinicians in the field of Regenerative Medicine. Sabrina endured a severe spinal cord injury in 1992 at the age of 14 in a car accident. With her magnetic personality, she has become a national advocate for stem cell research and a mentor to many affected by paralysis. Recently named a SELF magazine 2012 “Women Doing Good” Honoree, Sabrina has been featured in many media outlets, including CNN Headline News, Good Morning America, NPR, The Wall Street Journal, and most recently NBC’s Today show.
2011 STEM CELL ACTION AWARD HONOREES
Leadership Award: Sherry Lansing
Sherry Lansing is the former chairman and CEO of Paramount Pictures, current chairman of the Board of Regents of the University of California and CEO of The Sherry Lansing Foundation. She also serves on the Independent Citizens’ Oversight Committee of the California Institute for Regenerative Medicine and has made an immeasurable contribution to its success.
National Advocacy Award: Research!America
Research!America is the largest not-for-profit public education and advocacy alliance committed to making research focused on improving health a higher national priority. This organization motivates public support and funding for stem cell research.
Education Award: Let’s Talk Science
Let’s Talk Science is a Canadian national, charitable organization delivering science learning programs and services that turn children and youth on to science. This organization has taken a multi-pronged approach to help students and educators gain insight on topics surrounding stem cells, including a high school symposium called “StemCell Talks!,” hands-on classroom workshops, teacher resources that include a national biotechnology learning continuum, and CurioCity, an online program for teens.
Public Advocacy Award: University of Minnesota Stem Cell Institute
When the Minnesota legislature passed a bill criminalizing certain types of stem cell research, scientists at the nation’s first established stem cell institute at the University of Minnesota effectively led a successful advocacy effort to defend this valuable research which led to a veto, and the continuation of stem cell research in Minnesota.
Inspiration Award: Grant Albrecht
Since having developed a spinal myelopathy in 1996, Grant Albrecht has become a determined patient advocate. He has pursued countless avenues of treatment from the traditional to the alternative, and inspires others to chart their own course to rehabilitation and recovery. A highly sought after speech writer and strategic communications coach, Grant worked with Americans for Cures advancing the Prop 71 initiative, and presently serves on the Genetics Policy Institute’s strategic advisory board. He has spoken to many educational and community groups in his impassioned effort to promote a greater understanding of stem cell science, and to help mobilize the Pro-Cures community.
2010 STEM CELL ACTION AWARD HONOREES
National Leadership Award: Michigan Governor Jennifer M. Granholm
Governor Granholm is a long-time champion of stem cell research targeting lifesaving treatments to alleviate human suffering. Since taking office, she has effectively promoted Michigan’s biotech industry, which is now one of the fastest growing biotech sectors in the nation. The Governor has specifically targeted the burgeoning field of stem cell commercialization and regenerative medicine as a job creation and growth area for the state.
National Advocacy Award: A. Alfred Taubman
A. Alfred Taubman’s visionary leadership has resulted in the establishment of the A. Alfred Taubman Medical Research Institute at the University of Michigan, which is doing innovative stem cell research focusing on developing treatments for ALS, cancer and a host of other medical conditions. His support for Michigan Citizens for Stem Cell Research and Cures and Cure Michigan made the critical difference in ending the restrictive legislation governing stem cell research in the state.
Education Award: Canadian Stem Cell Network
The Network’s extraordinary commitment to public education has made it a model for other stakeholder groups. Some of the projects include the promotion of “Stem Cell Talks” public presentations; the production of a suite of summaries on stem cells, disease and ethics; and scientific support of the web site www.stemcellschool.org.
Grassroots Advocacy Award: Stephen Byer, Barbara Byer and ALS WORLDWIDE
Ben Byer’s ALS diagnosis in 2002 propelled his parents, Stephen and Barbara Byer, to learn about stem cell protocols and other potential treatments for him and many others. After Ben’s death in 2008, they formalized their efforts by launching ALS WORLDWIDE, a not-for-profit organization committed to scientific research interpretation, patient advocacy and care. Their work toward distinguishing legitimate clinical trials from invalid treatments has had far-reaching influence. Thousands of patient families have benefited from the support ALS WORLDWIDE provides.
Inspiration Award: Laura Jackson
Paralyzed in a cheerleading accident seven years ago, Laura Jackson has become a tireless and effective advocate for stem cell research. This articulate young woman has spoken at dozens of events under the auspices of Michigan Citizens for Stem Cell Research and Cures. She is also nationally recognized as a spokesperson on the issue of cheerleading safety.
2009 STEM CELL ACTION AWARD HONOREES
National Leadership Award: Maryland Governor Martin O’Malley
Since taking office, Governor O’Malley has spearheaded a number of strategic investments in Maryland’s bioscience industry. In addition to creating the Life Science Advisory Board, he has been instrumental in securing funding for bio initiatives, including $59 million over three years for Maryland’s Stem Cell Research Fund, thereby continuing Maryland’s innovative leadership in the burgeoning field of regenerative medicine. He serves as a national example of effective governmental leadership in the field of regenerative medicine.
International Advocacy Award: The Juvenile Diabetes Research Foundation International (JDRF)
JDRF is the global leader in research leading to a cure for type 1 diabetes. It sets the agenda for type 1 diabetes research and is the largest charitable funder and advocate of diabetes science worldwide. JDRF has played a historic role in advocating for new federal funding guidelines for stem cell research and directly funds diabetes research into the use of adult, embryonic and induced pluripotent stem cells in the pursuit of a cure for diabetes.
Education Award: Michigan Citizens for Stem Cell Research & Cures (MCSCRC)
MCSCRC is dedicated to educating the citizens of the State of Michigan, including public officials and policy makers, about the complex science, biomedical potential and current policies affecting stem cell research in Michigan. In 3 years, the organization engaged in over 300 presentations, 10 radio programs and 11 cable and television shows for a statewide educational program that reached over 2 million citizens throughout the state.
Grassroots Advocacy Award: Cure Michigan
In 2008, 2.5 million citizens of Michigan voted to protect embryonic stem cell research in the state constitution. Cure Michigan organized this successful ballot initiative campaign and remains Michigan’s leader promoting the advancement of state and national embryonic stem cell research and policy.
Inspiration Award: Margaret Conn Himelfarb
Margaret, whose son has type 1 diabetes, has worked tirelessly and effectively to promote stem cell research. She founded the coalition Maryland Families for Stem Cell Research and led the statewide grassroots campaign for stem cell research funding. She serves on the Maryland Stem Cell Research Commission, the Johns Hopkins Embryonic Stem Cell Research Oversight Committee, and JDRF’s International Board of Chancellors. A legendary advocate for JDRF, Margaret spearheaded the successful national campaign for a Diabetes Awareness postage stamp.
Inspiration Award: John L. Kellermann, III
John has courageously battled Parkinson’s disease with his characteristic resilience and courage. He made an important leadership contribution to the grassroots organization Maryland Families for Stem Cell Research. An exemplary and inspiring voice for patients and their families, John testified both in Annapolis and Washington in favor of stem cell research. He serves is a member of the Maryland Stem Cell Research Commission.
2008 STEM CELL ACTION AWARD HONOREES
National Leadership Award: Wisconsin Governor Jim Doyle
Governor Doyle is a stalwart and courageous supporter of stem cell research and a proponent of Wisconsin’s strategic goal to invest $750 million in biotechnology and stem cell research. Outspoken and eloquent, Governor Doyle is a leading spokesperson for the advancement of potentially lifesaving discovery.
National Advocacy Award: Christopher and Dana Reeve Foundation
Carrying on the legacies of its founders, Christopher and Dana Reeve, the Foundation continues to be a significant leader in the world effort in support for stem cell research. Through its effective education, outreach, advocacy and funding support, the Foundation brings us closer to finding a cure to paralysis through the study of stem cells.
Education Award: National Association of Biology Teachers
For the last 70 years, this non-profit association has served over 9,000 teachers, upholding scientific integrity and fighting for the right to teach accurate and current science without penalty from political or religious influence on content.
Inspiration Award: Brooke Ellison
Brooke’s heroic struggle and message of hope after a devastating injury left her paralyzed has inspired millions, as chronicled through her book, a movie and in an upcoming documentary to be premiered in September. She has founded The Brooke Ellison Project dedicated to the advancement of stem cell research.
Grassroots Advocacy: Ben Kaplan
Ben came onto the stem cell scene in a compelling promotional piece in support for California’s Prop 71. Ben was born with cerebral palsy, a fate not shared by his twin brother. He is a grassroots leader of the first rank and his ongoing creation “Bens Stem Cell News” is where many advocates obtain the very latest online progress report from the front lines of science, regulation and politics.
2007 STEM CELL ACTION AWARD HONOREES
Michael J. Fox
Parkinson’ Action Network
Dr. Ralph Dittman
Missouri Coalition for Lifesaving Cures
2006 STEM CELL ACTION AWARD HONOREES
Student Society for Stem Cell Research
Luca Coscioni Association
2005 STEM CELL ACTION AWARD HONOREES
Coalition for Advancement of Medical Research
Texans for Advancement of Medical Research